The Kate Foundation for Rett Syndrome Research is a 501(c)(3) nonprofit organization dedicated to raising funding for scientific research seeking the reversal of Rett Syndrome and the relief of Rett Syndrome symptoms.
Funds raised by the Kate Foundation go to the Rett Syndrome Research Trust, a 501(c)(3) nonprofit organization intensively focused on the development of treatments and cures for Rett Syndrome and related MECP2 disorders. Since 2009, the Kate Foundation has raised over $650,000 for this research.
Rett Syndrome is a neurological disorder caused by a mutation in a gene called MECP2. Since the gene’s discovery 16 years ago, there is evidence that alterations in MECP2 might contribute to other disorders including autism, learning disabilities, Parkinson's disease, and some neuropsychiatric disorders. Progress in our understanding of this gene’s function will reverberate across many disciplines and millions of lives.
Strengthened by the resolve of families suffering with Rett Syndrome and the determination of our own daughter, the Kate Foundation joins other Rett Syndrome fundraising entities around the world fighting to unlock the potential of our daughters by realizing a reversal of Rett Syndrome.